Bringing RA Out of the Shadows

This week was, Rheumatoid Arthritis (or Rheumatoid Disease) awareness day (February 2).  I’ve been thinking about how little people know about RA and how it affects those of us who suffer from RA. I was first diagnosed when I was 14.  It is hard to believe that this was only 16 years ago and there was limited access to the knowledge that internet resources provides us nowadays.  At the time, the only knowledge my family and I had about arthritis was simply that it was something old people got.  So we were very confused to find out that not only were we wrong, but now it was something I’d have to live with for the rest of my life.  Thankfully, the librarians at my school did quite a bit of research and gave it to my mom so she could be better informed and I learned as much as I could from my doctor.  Since then, I’ve always made sure to explain RA to those around me even if it doesn’t affect them directly.  I believe that educating people about RA will bring more awareness and make the lives of those living with RA much easier.

Since my diagnosis, the internet has made it easier for everyone, including myself, to learn about RA and what it consists of.  However, not many people start researching a chronic condition if it doesn’t affectt them.  According to the National Institute of Arthritis and Musculoskeletal and Skin Diseases, RA affects less than 1% of the population.  This small percentage isn’t nearly enough to achieve and create the type of awareness that other more well known and more publicized diseases have attanined.  Unlike ALS, Cancer, and Autism; it isn’t awlays easy to recognize when someone has RA.  Unless it has already damaged the patient’s joints enough to be visible to those around them.  Because of this, I‘ve had to deal with the classic “but you’re too young to have arthritis,” or “my grandma has that!” Most of the time I just explain that it’s not the same type of arthritis and that people can get RA since birth.  No age group is safe from autoimmune diseases.

I’ve had many unfortunate encounters with people who have thought I was exaggerating my pain, or making up that I had an illness that was “impossible” for someone as young as 14 to have.  It also doesn’t help that for the most part, this is an invisible illness.  So people can’t tell from looking at you that you have a legitimate medical condition.  I’ve been alienated by coworkers, called lazy by friends and family, been blocked in a handicap parking spot, and countless other hurtful encounters simply because there is not enough information out there for people to become fully educated on RA.

I believe that it is our duty to help inform people about what RA consists of.  Explaining it to those around you can be difficult because of the preconceived notions people have of arthritis in general.  I’ve found that it is always helpful to first explain the difference between RA and the arthritis your grandma might have and then explain in what ways it affects you in your everyday life.  This way people will not only understand what RA is doing to one‘s body, but also how it affects one‘s life.  Educating oneself and those around us on RA will not only make everyone’s lives easier, but will also bring more awareness and hopefully bring us closer to finding a cure.

National Institute of Arthritis and Musculoskeletal and Skin Diseases >>> http://www.niams.nih.gov/health_info/rheumatic_disease/

For information on RA awareness day (and image) >>> http://rheum4us.org/press-release-rheumatoid-arthritis-awareness-day/

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